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Tuesday, May 14, 2013

NICU Friends

A couple weeks ago we met up with some friends that were in Primary Children's NICU the same time as Ellie. It was so fun seeing these babies together out of the hospital! 


 Ellie, Savannah, and Robyn


I really enjoyed talking with Patty and Crescent. We all understand each other and how hard it is to have fragile children and how it is to constantly be worried about various medical problems. I feel a special bond with all of the moms that I met at the hospital. We all just "got" each other and understood. 


Savannah (in the middle) was born with a laryngeal cleft type 3, just like Ellie. Larygneal Clefts are rare in and of themselves, and type 3's are even more rare. When Ellie was transported to Primary Children's and I heard that there was another baby with the same diagnosis, I immediately knew that it wasn't coincidence that we happened to be there at the same time, in the same place. Patty (Savannah's mom) and I immediately connected when we met each other. We stay in contact quite often and discuss different problems and successes with each other. I am so grateful for her! Savannah is an amazingly smart baby with a lot of personality. She is doing so well developmentally and is just like any other baby her age, despite spending her first four months of life in the hospital. She has had a few other hospital stays too, and is currently in Primary's now. Her cleft repair has failed twice. They did surgery on it again yesterday. We are praying for her parents and her because we know how difficult it is to send your baby into surgery, and how long, painful, and emotionally exhausting the days of recovery are. 





That same day, we also went up and saw Barb, Ellie's NICU OT/PT. She is amazing and loves Ellie so much. 


We have been blessed to meet so many amazing and strong people this past year. 

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