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Tuesday, August 7, 2012

I never thought..

I never thought that I would be watching my baby go through surgery.. Or that I would have to leave her every single night and worry about who was taking care of her. I will never get over the empty feeling that it brings me every night.  I never thought that I wouldn't be able to hold her for almost a month. It's hard to not wish things were different, but I have had many confirmations that there is a plan. 

Sometimes my heart aches to watch what she is going through. I wish I could be going through it instead. I find comfort in hoping that she won't remember it. I worry that she has forgotten me because she has just been laying in her bed for a whole month.

Tomorrow or Thursday Ellie could be having surgery again.

Ellie a day before surgery:
Right after surgery (a 9-10 hour surgery)

I'm really happy that she will be having her next repair done soon. I'm scared to watch her go through it all again. The swelling, the paralytics, the morphine withdrawal..

Through this process, I have learned that there are always angels with us and with Ellie.. Some have been people that have been there for us and have helped us out. Some have been Heavenly angels. I am grateful for all of the people who have so generously given to us. I am so grateful to know that we are never left alone and that my little Ellie isn't alone when we aren't there with her.

Saturday, August 4, 2012

Good News

Well it has been a crazy week for us and we just wanted to update everyone on whats going on. On Tuesday, after a lots discussion with all the doctors, they decided Ellie needed to be transported. So they got everything going on getting her transported. We started packing up our apartment and getting things ready to go too. It was decided that Ellie was going to be transported to Primary Children's Hospital in Salt Lake City.

Since Ellie was in such a delicate condition, everyone was really nervous about the transport. They took her on a Learjet so it would be faster and smoother. There is usually one spot for a parent to go on the transport with her but they wanted to take the anesthesiologist in case anything were to happen to her. The transport happened on Thursday afternoon and Ellie got here in Salt Lake around 5:00. I flew out of New Mexico and got into Salt Lake around 8 pm. Ismael finished packing up our apartment into our car late that night and started driving to Salt Lake. He got here around noon the next day. Everything with Ellie's transport went pretty well. They hit some turbulence  which caused her to make more secretions, so she started desatting. They had to bag her to bring her back up and after they suctioned her she did well. We were so relieved to get her here and settled! 

Yesterday the doctors did a bronchoscopy to see what was going on and to see if her repair had healed well. Her repair looks great and all healed! Right now they are starting to wean her off of the morphine and sedation so that we can get her extubated and breathing on her own. We aren't sure what the next step will exactly be after that, but the goal is to get her all ready for her next surgery. We feel so blessed to be here close to family and that Ellie is doing so well. Thank you for all your prayers and support!
 

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